An Update On Baby Emma’s Progress

The Schultz family wishes to thank all of you who have been praying for Emma and the family. They are grateful for the donations and the orders for the forthcoming cookbook “Heart of the Family”, but most especially they thank you for all your prayers…

 An Update on Emma from her mother, Jackie
ED NOTE: For those of you who have not read the touching story of baby Emma and her loving family, please follow this link:
I just wanted to send an update of Emma and wanted to thank you again for sharing her story. We feel so blessed to have so many reaching out to us.
On August 3, 2010
"Put It In God’s Hands"
"Today (yesterday actually..haven’t gone to bed yet) was a different day"…we’ve gone through with Emma cardiac caths, heart surgeries, helicopter flights, intubations, extubations…but today was different. Today Emma had a cardiac cath(pictures taken and pressures checked through arties). She has had this done before. Shane has had an uneasy feeling for days…I felt she would do just fine as she usually does, but feared what they would find. There was talk Emma might be facing diastolic heart failure, which there would be nothing doctors could do for this…also talk of just a band on the pulmonary artery needing to be tightened.
After hours of waiting and praying…”God’s will be done", we were informed that Emma’s heart had slowed way down and actually stopped for a few minutes. A code blue was paged over the intercom and a nurse came to tell us that Emma was given medications to start her heart again and CPR was performed and that Emma was now stable. The test was then continued.I wondered, is this where we are headed? Is this going to be God’s Will? I prayed more.."God’s Will be done." At the end of the procedure one of the cardiologists came out and said yes, we had a scare and Emma’s heart stopped for a few minutes due to certain things going on during the test, but we have some good news…Emma does not have diastolic heart failure and we may only need to tighten a band. My heart felt like it jumped up to my throat for a second and I made sure I heard correctly..What awesome terrific news! Then I thought God’s Will Is Done! We have Emma with us longer and received better news than we had hoped for! Praise God!
Of course we are not out of the woods yet. We still have to get Emma’s fluid balance figured out and go through a small surgery tightening a band, but really are we ever out of the woods? I guess what I am trying to say is I prayed for God’s Will to be done and put this day in God’s hands. There was of course anxiety and worry felt throughout the day, but it was different. The heavy heart I have felt for many many months was not with me today. I gave that heaviness to God when I prayed for God’s Will to be done and when I put this day in His hands. And His Will was done. "Today was a different day." Thank you God for keeping Em with us today and every day after. Amen.
August 24, 2010
A few days later the procedure was done and a week later she was breathing on her own again. We are happy overall with Emma’s progress. We are just waiting on her body to adjust to the surgery and the medications before we can go home. We occasionally have set backschecking her kidneys and blood sugar. Lately Emma’s kidney functions have been a little elevated, but this can be normal since all organs can take a hit in surgeries.
During this stay we have seen other families "frequent fliers" like us back at the hospital and some that have not left since Emma’s last admission. We have met new families, shared stories and have recently mourned the passing of sweet baby girlwho we had grown very fond of,  both her and her family.
Emma is out of ICU and will be closely watched for a few days. If things looks good and continue this way, we may be going home soon. I hope this is the case as it is very difficult to live 2 hours away from the hospital.
We are thankful to be staying at the Ronald McDonald House again, but school has started for Emma’s older brother and sister. We are now a separated family again. Shane and I switch back and forth during the week. One parent stays with Emma and the other is at home trying to keep a routine going with school. Halfway through the week Shane and I switch off.  Neither one of us is currently working, but hopefully if Emma can come home and stay homethis can change. Until then we literally live day to daymaking the best of it. Our family is very close and I am very thankful for this. It has been a long 14 months. Alot of driving, alot of praying, but hoping this year will be a better one than last. I have learned alot medically, but also spritually.
We are thankful for all of the support and prayers,
Jackie Schultz (Emma’s mother)
A reminder:   Emma’s cookbook should be done by the end of September. It will have over 500 recipes and also pictures of Emma and her family, articles from newspapers, the story of Emma’s heart condition and more.
 To place an order for a cookbook or to send a donation to Emma and her family please write to: Heart of the Family Cookbook, 620 Knox Road, 2150 East, Yates City, Il. 61572

ED NOTE: For those of you who have not read the touching story of baby Emma and her loving family, please follow this link:


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